ASCC Message Board

fallen angel

bentonpanther — Mon, 24 Aug 2009 20:52:01 GMT

I have horrible news. Kristie Webb of Harrison Passed away from a major illness.

prayers requested

bentonpanther — Sat, 22 Aug 2009 00:30:53 GMT

gang
please keep your Kristie Webb (KLWebb) from Harrison in your prayers. She is in a local medical center in Harrison fighting for her life. She is fighting a major infection. she is on a vent as we speak..

Forum: Spina Bifida

Spina Bifida Association Holds Groundbreaking First World Congress

bentonpanther — Sat, 18 Jul 2009 06:42:25 GMT

Spina Bifida Association Holds Groundbreaking First World Congress

on Spina Bifida Research and Care

Orlando, Florida - The Spina Bifida Association (SBA) recently concluded the First World Congress on Spina Bifida Research and Care in Orlando, Florida. This international event brought together over 350 clinicians, medical professionals, and researchers in the area of Spina Bifida to discuss the future of care for this challenging and complex birth defect.

Anchored by keynote sessions delivered in each of the eight major disciplines involved in Spina Bifida, the Congress was highlighted by breakout sessions in which the work of over 150 scientists was presented.

To date, very little research has been conducted on the many components of this complex birth defect. Recognizing this, SBA established this event so that work that is being conducted could be furthered and glaring necessities in the Spina Bifida research landscape could be recognized and addressed, stated Joseph Giffels, SBAs Research Director.

One of the most potentially impactful findings presented during the three-day Congress was a revised figure on the number of Americans living with one of the various forms of Spina Bifida. Preliminary findings from a study conducted at the Centers for Disease Control and Prevention (CDC) indicated that instead of the 70,000 figure which has been widely used, the actual number is closer to 185,000 living in this country with this challenging birth defect.

While further quantitative evaluation needs to be done to support this finding, this research clearly demonstrates the prevailing need for more work to be done in understanding and managing Spina Bifida and its related conditions, stated Giffels.

Sponsored in part by the CDC, the National Institutes of Health (NIH), and the Agency for Healthcare Research and Quality (AHRQ), the First World Congress also featured famed journalist Judy Woodruff delivering the Hal Pote Memorial Lecture, named for the founding President of the Spina Bifida Foundation who passed away in 2007. Woodruff, the mother of a son living with Spina Bifida, addressed the need for further funding to support research efforts as well as offered insight into the impact public policy development could make on these challenges.

Information about the First World Congress on Spina Bifida Research and Care, including abstracts for the majority of work presented, can be found on the event Web site at http://medicalconference.spinabifidaassociation.org.

The Spina Bifida Association is the nations only national voluntary health agency dedicated to serving the needs of the Spina Bifida Community. Its programs give hope and strength to more than 250,000 people whose lives are touched by this disabling birth defect. One of the SBAs most vital functions is to communicate to the 65 million women of childbearing age the importance of daily folic acid intake to reduce the risk of neural tube defects such as Spina Bifida. For more information, visit http://www.spinabifidaassociation.org or call 800-621-3141.

Forum: Spina Bifida

Victory Walk Inc now open!

jriddell — Thur, 11 Jun 2009 16:40:33 GMT

Hey guys,

I'm a trainer at Victory Walk Inc. which is a non-profit spinal cord injury rehabilitation center. I have been trained out at Project Walk and I have seen some amazing stuff that I'm wanting to bring back to Arkansas to really help improve the quality of life for the SCI injury community. We have some advanced equipment including an F.E.S. bike and offer customized routines based on your level of injury.

We are in Springdale AR just right off the second exit at 1200 N 40th St. Our phone number is 479-365-2600 and we are working on a website which should be finished in the next week. You can see an early version of it at victorywalkinc.com. My email is jonathan.m.riddell@gmail.com if you have any questions about the facility or about our program.

Jonathan Riddell, CSRA
jonathan.m.riddell@gmail.com

Forum: Spinal Cord Injury

Electric Wheelchair

gsfarms — Mon, 20 Apr 2009 18:59:09 GMT

Quantum 6000 powerchair. Excellent shape. Has new battries last fall. 300 pound capacity. 5 speed with joystick control.

Asking $4,000.00 or best offer

E-mail me at gsfarms@hotmail.com
;

Forum: For Sale

Any one going to orlando?

bentonpanther — Sun, 15 Feb 2009 22:41:34 GMT

is any one going to the SBAA national conference in orlando? its june 30-july 3rd. I am.

Forum: Spina Bifida

ADA Lawyer for Arkansas now!

ArkanzanWheeler — Fri, 13 Feb 2009 18:25:53 GMT

I finally found a lawyer that is going to help get this area up to ADA code. I have already sent him a list of places I know about that need changed, if you know of any please let him know so we can get every place accessible. He is out of Florida but he said he can fly here and do what needs to be done. Here is his law firm website: http://www.weitzfirm.com/ There is no cost to the person making the complaint so let's get this state barrier free!

Forum: Old Messages

how many adults with SB are there here?

bentonpanther — Thur, 05 Feb 2009 20:23:33 GMT

I was just wondering how many adults are their with SB there are on this site. I am 39 I live in saline county. if you want to chat IM me.

Forum: Spina Bifida

new here

bentonpanther — Thur, 05 Feb 2009 20:17:57 GMT

Hi I'm don. I'm from benton. I am 39 years old I have spina bifida. I am single, I have a degree in psychology with a minor in criminal justice. (UALR) class of 1997. any one interested in saying hi just email me

Forum: Spina Bifida

Spina Bifida Camp

mjstanton — Tue, 20 Jan 2009 21:24:31 GMT

The date for Spina Bifida Camp this year will be June 28 through July 3, 2009. Applications will be going out the first part of March. Be sure to look for more information in our upcoming newsletters.

Forum: Spina Bifida

Yoga

KLWebb — Sat, 17 Jan 2009 15:02:38 GMT

Yesterday someone recommended I try this. I thought I read some where they have yoga for someone with limited mobility and I was trying to find out about that. Any help would be appreciated.

Forum: Sports

Gone for a while

KLWebb — Sat, 10 Jan 2009 20:05:26 GMT

I have not been here for a while becuase my computer died. I tried to fix it and I swear it started eating files. Anyway I got a laptop for Christmas so I am back. What has been happening on the board.

Forum: Spina Bifida

Spina Bifida Blog

MiddleSister — Mon, 15 Dec 2008 06:33:07 GMT

We are a homeschooling family that includes one with spina bifida. We have a blog to share events going on with our daughter with spina bifida. It is meant to be an encouragement to those who have spina bifida in their family and for those that homeschool children that are differently-abled.
http://www.homeschoolblogger.com/spinabifida

Forum: Spina Bifida

NEW ARKANSAS Spina Bifida WEBSITE

xspinax — Sat, 13 Dec 2008 06:24:43 GMT

I have taken over the website for the Spina Bifida Support Group of Arkansas formally know as Spina Bifida Association of Arkansas

Please come by and check it out

http://www.sbarkansas.com

Forum: Spina Bifida

Air Travel

athena95us — Tue, 04 Nov 2008 20:43:22 GMT

Hi,

Anyone have a urostomy pouch and traveled by plane overseas. I was thinking about taking a trip to NZ. It's basically 16hours in the air. I was wondering how do you handle your urostomy pouch issues while spending that long on a plane? Any other suggestions, other than go through the whole on board wheelchair drama?

Forum: Spina Bifida